The National Marfan Foundation is gearing up for its 28th Annual conference, which will be held in Chicago, August 2 through 5, and hosted by Northwestern Medicine® and Ann and Robert H. Lurie Children’s Hospital
. The four day conference has something for everyone with Marfan syndrome, including access to many of the top Marfan syndrome experts in the world, and the opportunity for a free patient evaluation with some of these doctors as well. The Northwestern team is led by medical director and cardiologist, Marla A. Mendelson, MD
and surgical director and cardiac surgeon, S. Chris Malaisrie, MD
So, how many of you have heard of Marfan syndrome
(MFS)? Only about one in 5,000 people have MFS, but it impacts men and women of all races and ethnic groups. MFS is a disorder of the connective tissue, which holds all parts of the body together and helps regulate how the body grows. Because connective tissue is found throughout the body, MFS features can occur in many different areas like the heart, blood vessels, bones, joints and eyes. While there is no cure for MFS, advances in medical care are helping people live longer and enjoy their lives.
The conference is designed for people with MFS to come together in one area and feel a sense of community. There are workshops for children, teens and young adults to give those with MFS, and other related disorders, a platform to discuss their issues and bond with one another. Nearly 7,500 individuals with MFS, families, spouses, siblings and medical professionals have attended this event since it kicked off in 1982. To learn more about Marfan syndrome and other related disorders, visit Northwestern’s Bluhm Cardiovascular Institute. To register for the conference, visit the website.