Northwestern's Cystic Fibrosis Adult Care Center Honored for Excellence, Commitment to Quality Care

Northwestern Medicine
News October 21, 2014
Varsha Patel, Ashley Bowen, Joanne Cullina, Raquel Garcia-Cano, Michelle Prickett, Manu Jain, Lori Yoder
Northwestern University’s Cystic Fibrosis Adult Care Center was recently honored by the Cystic Fibrosis Foundation for their work to engage the cystic fibrosis community through advocacy, event participation and committee involvement.

Northwestern’s clinic coordinator, Joanne Cullina, MSN, accepted the award on behalf of the entire care center team, which is directed by Manu Jain, MD, MS.

“It is a great honor for our team to receive this award,” Cullina said. “We are indebted to the Cystic Fibrosis Foundation for all of the work they have done for our patients. We look forward to our continued collaboration with the foundation, both nationally and locally, as we work towards the common goal of extending the lives of those living with CF.”

Cystic fibrosis (CF) is a life-threatening genetic disease that primarily affects the lungs and digestive system. An estimated 30,000 children and adults in the United States have CF and about 1,000 new cases of CF are diagnosed each year. In the 1950s, few children with CF lived to attend elementary school. Since then, tremendous progress in understanding and treating CF has led to dramatic improvements in the length and quality of life for those with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond leading to the need for adult care teams such as Northwestern’s to address needs such as pregnancy, reproduction, employment and insurance.

Cystic Fibrosis Foundation announced the award at the 28th annual North American Cystic Fibrosis Conference (NACFC), held in early October in Atlanta. Northwestern was one of three adult care centers to be awarded the 2013-2014 Outstanding Partnership between a CFF Chapter and Care Center award. This is the first time Northwestern has won the award.  

Northwestern University Adult Care Center, in partnership with Greater Illinois chapter of the Cystic Fibrosis Foundation, helped to facilitate a new initiative to engage and activate the adult CF community through advocacy, event participation and committee involvement.  Lori Yoder, LCSW, Clinical Social Worker, initiated directives from the Illinois chapter adult engagement committee which led to adults living with CF having a stronger voice in the Chapter’s work.
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