Caregiver Support

Caregiver Support

Caregiver Support

Being a good caregiver to someone facing a terminal illness is a difficult situation to prepare for. A good first step is to understand what you don't know. Access to helpful resources can often make a big difference, for care receivers and caregivers.

As caregivers of an enrollee in our program, the Hospice Care team can help you cope with the challenges you will face. Hospice nurses and social workers can assist you in developing a plan to arrange for the resources you need, and can often coordinate resources from other community partners that can be of help.

Suggested Reading for Caregivers

Northwestern Medicine Home Health and Hospice at Kishwaukee Hospital offers a library of helpful books that caregivers in the community are welcome to check out. Come by our office in DeKalb to browse our selection.

The following titles are just a sampling of the many resources Northwestern Medicine Home Health and Hospice at Kishwaukee Hospital offers to caregivers and hospice patients in the community:

  • The Validation Breakthrough by Naomi Feil: simple techniques for communicating with people with Alzheimer's-type dementia
  • The Needs of the Dying by David Kessler: a guide for bringing hope, comfort, and love to life's final chapter
  • The Four Things That Matter Most by Ira Byrock: a book about living
  • It Takes a Village to Say Goodbye by Doug C. Smith, MA, M.Div. and Dorreen K. Rardin, RN, BSN: a book of resources for family and friends of the terminally ill and grieving
  • A Different Season, The Hospice Journey by G. Leigh Wilkerson, RN
  • Final Gifts by Maggie Callanan and Patricia Kelley: understanding the special awareness, needs, and communication of the dying
  • Final Journeys by Maggie Callanan: a practical guide for bringing care and comfort at the end of life

Related Resources

Helpful Links

Knowledge is powerful for caregivers, so Northwestern Medicine Home Health and Hospice at Kishwaukee Hospital has compiled the following list of websites so you can find the information you need:

National Hospice and Palliative Care Organization*
Some of the best informational resources we have found for caregivers are provided through the National Hospice and Palliative Care Organization.

National Alliance for Caregiving*
The National Alliance for Caregiving is dedicated to providing support to family caregivers and the professionals who help them, and to increasing public awareness of issues facing family caregivers.

AARP Caregiving*
This website for family caregivers includes tip sheets, articles, interactive features, links to social networking features such as support groups and discussion boards, and many other resources for those who are caring for a loved one now or who may do so in the future.

National Institute on Aging*
Free publications on caregiving offered by the National Institute on Aging.

Alzheimer's Association*
For individuals caring for a loved one with Alzheimer’s disease, this site provides a wealth of information and resources.

Family Caregiver Alliance*
Family Caregiver Alliance (FCA) provides information, education, services, and research to support individuals caring for family members and loved ones.

Legal Information

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